Castleisland and Corca Dhuibhne Municipal District Chairman Cllr. Fionnán Fitzgerald sent in notification that Ballymacelligott GAA Club Health and Wellbeing committee together with the wider community are organising a fundraising event for Rose O’Flaherty this Sunday, July 11th.
Rose, from Ballymac, is a vibrant four-year-old who suffers from Spinal Muscular Atrophy (SMA.) All proceeds will go towards her physiotherapy sessions.
Events and times include: From 10.30am until 1pm at Ballymac GAA pitch a Bake Sale will be held with €2, €5 and €10 boxes.
If you would like to donate some baked goods you can drop it to the pitch from 8.30am on Sunday morning.
A raffle at €2 a ticket or three for €5) and Spin for Rose which involves keeping two bikes ‘spinning’ for two hours for Rose!
This will be achieved through the efforts of the club’s senior women’s team, senior men, coaches and Scór members.
You’re invited to come along and be part of this fun event!
Roses parents began to notice that she wasn’t meeting the milestones that their first child easily achieved at an early stage and began to worry.
When they realised that she did not have the strength to hold her head or her upper body at a stage when most or all children would have been able to do so, when she struggled at weaning stage to take any solids and as she began to have recurrent chest infections by the age of four months, they began to further investigate why this was the case.
Family and Community Support
Following comprehensive testing Rose was diagnosed at nine months with SNA type 1.
Rose began her treatment of Spinraza shortly afterwards. This diagnosis turned Rose’s, her parents and her family’s world upside down and in one sentence, Rose’s future became very uncertain and a future that would depend on the support of her family, the medical profession and the community at large. See all of Rose’s story with a click on the link here: http://helprosebloom.ie/?page_id=67
If you cannot attend on Sunday you’re asked to please donate through: http://www.gofundme.com/helprosebloom
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